Riva Pomerantz
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Deafening Silence 05/29/2010
3 Comments
 
I read, with great interest and sadness, the beautifully written and poignant article by Azriella Jaffe in this week's Mishpacha Magazine about a young woman with cystic fibrosis, fighting for her life. But aside from the inspiration and message of the article, a much greater issue emerged, eclipsing even the backbone of the story. The tragic reality of this young woman is that her family has chosen to keep her illness a complete secret. She is living a lie, and much effort and energy is regularly expended to keep up the game. No one must know that she suffers from cystic fibrosis. No one.

The question that begs to be asked is: Why? Followed by an immediate: And who says? I imagine the answer to the first is "shidduchim" (matchmaking); I am unsure of the answer to the second. Has the family consulted with a prominent Torah authority who ruled they must keep the illness a secret? It seems absolutely impossible to me that such a ruling would be handed down; for two reasons. Firstly, Klal Yisrael (The Nation of Israel) is characterized by three inborn traits, inherited from our forefather, Avraham Avinu: rachmanim (merciful people), bayshanim (modest people), and gomlei chassadim (people who bestow goodness and acts of kindness upon others). We are taught, for example, that the reason Hashem has struck some of our nation with the challenge of poverty is to enable the rest of us to snatch the privilege of helping our brethren. Wouldn't the same apply to a physical challenge, such as cystic fibrosis? Wouldn't the community want the privilege of rising to the challenge, helping the family and this young woman through their difficult trial? Entire organizations are ready and waiting to help the chronically ill; why deprive them of the opportunity?

Secondly, hiding an illness of this sort implies something shameful about it, which is antithetical to Jewish thought which believes that everything comes from G-d. This young woman was given the challenge of cystic fibrosis the way some people are given the challenge of arthritis, or jealousy, or wayward children. Where does the need to hide come from?

Thirdly, here is a young woman who is suffering unimaginably, physically and emotionally. Doesn't she deserve, at the very least, the support of her friends and family? Why exacerbate her suffering by making her undergo her nightmare in complete and total isolation--actually, in something much worse than isolation: in a total, fabricated, charade? We know that "a sorrow shared is a sorrow halved". Why should this young woman be an island? Why should her family be tormented alone? Why would it even be permissible to increase her suffering through this modus operandi? It is really quite beyond me to understand.

If it is shidduchim the family is concerned about, and if that is the root cause of making their decision to hide their daughter's illness, that would raise a very, very thorny issue, one that we, as a society, have long evaded. That's for another post--probably juicy, possibly of a personal nature. Meanwhile, I cannot judge this particular family, and I imagine their decision was absolutely heart-breaking. All I can say is that my heart goes out to them and their poor daughter. May she be granted a refuah shelaimah (complete recovery) very soon.  
 


Comments

Elliot link
05/30/2010 00:33

The issue of hiding illnesses is IMHO an indication of the rot inside of certain communities. As you mention, there are so many way for a community to help a person and their family through illness, hurt and trouble. Our sages have time and again stressed the importance of gimilut chasadim. Yet, certain cultures have chosen to sideline those will illnesses. They and their family are effectively ostracized from the community because clearly, they are tainted in God's eye. Why else would they become ill. Not only the person who is ill, but the entire family becomes tainted and unsuitable for shiduchim.

My sister developed cancer many years ago and the community in which we lived took it upon themselves to visit, to help and to pray for her recovery. B"H, she is well, marries and has many children. Had our family chosen to hide her illness, we and the community would have suffered.

When will the haredi community stop living in a ghetto and start becoming part of Am Yisrael, in good and in bad, in sickness and in health?

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Doesn't matter
06/03/2010 08:30

I think I heard her speak on Chazak. I felt so bad that she had to go through all that alone, without support and understanding.
However, just to give another perspective, when a family member was diagnosed with cancer, we were told explicitly by Gedolei Hador that we consulted with to keep it a secret. At the time, it was a bit difficult, especially in the first few weeks after the diagnosis, but in the long run, I am so grateful. I never had to deal with probing questions, pity or with labels. That can be draining too, even with all the purported support that comes with sharing an illness with the community.

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A fresh perspective
08/19/2010 12:45

Think for a moment about any siblings the young woman might have. Because CF is genetic, if it becomes known that she has CF, people may look at her siblings differently. The nature of CF is such that children who have it can often lead outwardly normal lives through most of their childhood. So now her ten year old brother, who may or may not have CF, will be treated differently-- people will start to think of him as a victim, too. Kids want to be treated as normally as possible, not as nebach cases who may have just a few more years until they take over their older sisters position as sick person of the community.

On the other hand, it's not easy for children to cope with their older sister being very ill, especially if they've been diagnosed with the same condition. Having to keep it a secret surely makes it more difficult in many ways that are hard to imagine. Think about the twelve year old who can't stay overnight at a friend's house for fear the friend will see her treatments and figure out her secret. And that's a minor difficulty.

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    About Riva Pomerantz

    I'm a freelance writer, widely published in Mishpacha Magazine, www.aish.com, amongst others. You can buy my books, Green Fences, Breaking Point, and Breaking Free, at www.targum.com. My serialized story, Charades, is really heating up!

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